NF Midwest 2019 Top Ten

2019 NF Midwest Top Ten

As we look forward to amazing things in 2020 here’s a look back at our 2019 Top Ten in NF Midwest events and news.

Thank you to all our donors, volunteers, board members, and staff who made it all possible.

Click the headlines to learn more.

• Drug up for FDA Approval for NF1 Plexiforms

• ​New Articles on the Removal of Cutaneous Neurofibromas

• New Care Guidelines for Children with NF1…Care Guidelines for Adults with NF1 were published in 2018

• Another $15 Million for Neurofibromatosis

• New Study Results on Pain and Patients with Neurofibromatosis Type 1

• New Website Connects NF Patients with Doctors 

• 12 Children from NF Midwest sent to Camp New Friends

• 10 Adults from NF Midwest Awarded Academic Scholarships

• New Young Adult Leadership program

• Many stories written about people with NF

Others that we had to exclude (because then it wouldn’t be a “Top Ten”) include an incredible Symposium and iNFo Fair in November; a research grant to Massachusetts General Hospital; four fantastic Great Steps walks; support meetings and community events in Kentucky, and Indiana; recruitment for several studies; participation in REiNS; and more.