2019 NF Midwest Top Ten
As we look forward to amazing things in 2020 here’s a look back at our 2019 Top Ten in NF Midwest events and news.
Thank you to all our donors, volunteers, board members, and staff who made it all possible.
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New Care Guidelines for Children with NF1…Care Guidelines for Adults with NF1 were published in 2018
Others that we had to exclude (because then it wouldn’t be a “Top Ten”) include an incredible Symposium and iNFo Fair in November; a research grant to Massachusetts General Hospital; four fantastic Great Steps walks; support meetings and community events in Kentucky, and Indiana; recruitment for several studies; participation in REiNS; and more.