Celebrating 35 Years

New Care Guidelines for Children with NF1

From the American Academy of Pediatrics

New Care Guidelines for Children with NF1

The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type 1 in the May journal Pediatrics.

This guideline is meant as a tool for physicians treating children with NF1 such as  pediatricians, family practitioners, geneticists,  neurologists, dermatologists. etc. We encourage parents to share this article with any one who might play a role in caring for their child with NF Type 1.

This new guideline was created by a dedicated, interdisciplinary group of experts in the care of individuals with NF1 including David T. Miller, MD, PhD, FAAP; Debra Freedenberg, MD, PhD, FAAP; Elizabeth Schorry, MD;  Nicole J. Ullrich, MD, PhD; David Viskochil, MD, PhD; Bruce R. Korf, MD, PhD, FAAP; The Counceil on Genetics; and the American College of Medical Genetics and Genomics. NF Midwest thanks them all for their incredible work.

Care Guidelines for Children with NF1

Care Guidelines for Adults with NF1


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