NF Midwest provides Camp New Friends with funds to make it affordable for all kids with NF from the Midwest. No child from our region is left behind.
NF Midwest supports and sends children with neurofibromatosis to Camp New Friends a camp run by the Brainy Camps Association which is a subsidiary of Children’s National Health System.
The camp is nestled in the heart of the Shenandoah Mountains of West Virginia, on the grounds of Timber Ridge Camp, 90 miles west of Washington, DC. It runs every year for one week in July.
Going to Camp New Friends creates memories and support that last a lifetime! NF Midwest is proud to sponsor children with neurofibromatosis to Camp New Friends in West Virginia each summer. Spending a week at camp with peers and adults who live productive lives with neurofibromatosis gives hope to campers for their future. Campers share how Camp New Friends is the highlight of their summer, how awesome it is to be with kids just like themselves, where they don’t feel different. This experience helps them to learn more about their neurofibromatosis, increase self-esteem, improve social skills and personal responsibility, all in a supportive, fun filled environment.
Camp New Friends allow children ages 7 to 16 to:
I just had to commend you on an amazing event yesterday. I have to admit, this whole fundraising experience has been extremely emotional for me. I've been focusing on NF and thereby losing sleep worrying about [my daughter's] future way more than I'd like to. To be honest, I was a little worried about attending the walk and getting more upset. I actually had the best time. It was such a fun, positive event. I felt like everyone had so much fun and it was a great thank you to all of our supporters. You all do such incredible work. And the award for top-raising team...I was super excited to win the title and the plaque, I had no idea we'd get a bag full of awesome loot! Thanks so much for everything. A part of me wishes I had still never heard of NF, but since it's in my life to stay, I'm so glad that all of you are too. We are going on vacation next week and I'm taking the rest of the month off from NF, but later in the summer I have a group of amazing moms in my community ready to enlist and help me plan a local fundraiser.
© 2016 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
Non Profit Web Design by Idea Marketing Group