Celebrating 35 Years

Camp New Friends

NF Midwest provides Camp New Friends with funds to make it affordable for all kids with NF from the Midwest. No child from our region is left behind.

Support for a Lifetime!

NF Midwest supports and sends children with neurofibromatosis to Camp New Friends a camp run by the Brainy Camps Association which is a subsidiary of Children’s National Health System.

The temporary home for Camp New Friends is at Blue Ridge School in St. George, VA located 20 miles from Charlottesville and 2 hrs. from Washington DC.  Brainy Camps is making exciting plans to build their own campsite to fulfill their dream of expanding their camps and offering year-round programming to campers!


Memories that will last a Lifetime

Going to Camp New Friends creates memories and support that last a lifetime! NF Midwest is proud to sponsor children with neurofibromatosis to Camp New Friends in  Virginia this summer. Spending a week at camp with peers and adults who live productive lives with neurofibromatosis gives hope to campers for their future. Campers share how Camp New Friends is the highlight of their summer, how awesome it is to be with kids just like themselves, where they don’t feel different. This experience helps them to learn more about their neurofibromatosis, increase self-esteem, improve social skills and personal responsibility, all in a supportive, fun filled environment.

Camp New Friends allow children ages 7 to 17 to:

  • Establish positive and long-lasting social connections
  • Draw emotional support from others with the neurofibromatosis (children & adults)
  • Learn to understand their disorder and manage it effectively
  • Build self-advocacy skills, improve their self-worth and gain independence

People Are Talking

Today I had the chance to get together with a friend that I haven't seen in quite some time, and we managed to talk for three hours about our boys, ages 9 and 12, both with NF1. On my way home, I thought about how blessed I have been and the blessing that has been NF Midwest. My family's lives have been tremendously impacted by the NF Midwest family.  That's truly what they have become to us-family.  Earlier this spring, we had the opportunity to go to the NF Midwest office in St. Charles, IL.  I'm not quite sure what I expected, but there were only three people running this organization that serves NF families in six states! Little did I realize that this visit would lead to the biggest adventure in all of my son 9 years, as he got to go to NF camp in Virginia. Not a day goes by since he came home that camp isn't mentioned. Even more remarkable than that is that those campers’ experiences were made possible by people who just want to make a difference. Making positive differences in the lives of people with NF is ultimately what NF Midwest represents to me. Of course, their contributions to research are extraordinary, and our family has seen first-hand how wonderful camp can be, but I am just as moved when I see a simple message from the staff at NF Midwest offering thoughts and support for someone who is scared and anxious about a test result. The uncertainties of NF can be too much for people to bear and can leave them feeling powerless (yes, I am speaking from personal experience). Our participation in NF Midwest has helped us take some of that power back, and has given us hope.

- NFmom

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