
Eli – A Face of NF
When Eli was three years old, he was diagnosed with neurofibromatosis type 1, something we had never heard of before….
When Eli was three years old, he was diagnosed with neurofibromatosis type 1, something we had never heard of before….
Wyatt was diagnosed with NF type 1 when he was 2 years old. He will be turning 13 years old…
May is NF Awareness month. This year, to grow awareness, we are going to be sharing stories of how this…
Katherine (or Katy) is 5 years old and was diagnosed with NF1 in October of 2018. Our first sign of…
Noah was 7 months old when he was diagnosed with NF1. He is almost 3 years old now. Noah has cafe…
Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…
The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…
Amazing volunteers in Fort Wayne are doing it 4NF and have put together a special family night for people in…
If you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…
May is National Neurofibromatosis (NF) Awareness Month (and in particular, May 17th is World NF Awareness Day), so the Fort…
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.