
Two Research Studies on Pain in NF1 Looking for Participants
My name is Frank Buono and I am an Associate Research Professor at Yale School of Medicine. About a year…
My name is Frank Buono and I am an Associate Research Professor at Yale School of Medicine. About a year…
Great News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
The Medical College of Wisconsin is looking for people with neurofibromatosis type 1 ages 14 to 30 to participate in…
In 2017, I became involved in a clinical research trial through Medical College of Wisconsin for benign cutaneous neurofibromas. Being…
Sera has a tumor that runs the length of her arm, all the way from her hand up to her…
Giving Tuesday is December 3rd and we invite you to join us in coming together with your family, friends, co-workers,…
At NF Midwest’s Symposium and iNFo Fair last Saturday, November 9th, we were very fortunate to have Dr. Lu Le…
Big news just hit…though it has been expected! Many of us have been following the success of the drug selumetinib…
Have you ever wondered what drives people to accomplish great things in their line of work? Steve Jobs once said…
When I started as the executive director of NF Midwest in 2008 I had already served on the NF Midwest…
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