Two Research Studies on Pain in NF1 Looking for Participants
My name is Frank Buono and I am an Associate Research Professor at Yale School of Medicine. About a year ago many in the NF community participated in a research study of mine. I now have two new research studies on Neurofibromatosis Type 1 and the effects of pain. Please read each description below, and see if you are interested. You can participate for both studies if you would like. Please feel free to email me if you have any questions:
Research Study 1: Understanding of Chronic Pain and Work Barriers within NF Population
You are invited to participate in completing a survey investigating the impact of your chronic pain due to Neurofibromatosis Type 1 (NF1) on your quality of life and work barriers. The purpose of this study, is to use your feedback to understand if chronic pain affects work related barriers. If you agree to participate, the survey will be anonymous and will take approximately 30 minutes to complete. Upon completing the survey, you will be entered in a drawing to earn one of four 50 dollar gift cards.
Your participation is voluntary. You can refuse to participate or withdraw from this survey at any time. If you decide to participate, you may still refuse to answer any questions that make you feel uncomfortable.
Research Study 2: Innovation in the Treatment of Persistent Pain in Adults with NF1: Implementation of the iCanCope Mobile Application
You are invited to participate in a group based focus group to discuss your chronic pain due to Neurofibromatosis Type 1 (NF1). The purpose of this study is to evaluate if a mobile application can help reduce pain severity and interference adults with NF1. If you agree to participate, you will be asked to complete a short survey, and 1 hour focus group. Upon completing the focus group, you will receive a 25-dollar gift card. The focus group will be audio recorded to generate centralized themes. If you would like to participate please click HERE, or below, and answer the questions to qualify for the study, or if you have any questions, you can email Dr. Frank Buono at .