Celebrating 35 Years

NF Midwest Symposium and iNFo Fair

NF Type 2 Research Discoveries

iNFo Fair 2019: NF2 Research

Have you ever wondered what drives people to accomplish great things in their line of work? Steve Jobs once said “The only way to do great work is to love what you do.”

Dr. Long-Sheng Chang is one of those people. He has devoted his entire career to searching for a cure for NF2 and he absolutely loves his work!

Dr. Chang’s passion for developing new drug discoveries and cutting edge treatments is second to none. Not only is he a brilliant scientist but he is also one of the most congenial and down to earth persons you will ever want to meet. Everyone’s experience with NF2 is important to him and he loves to interact with people, to hear their stories, and to answer their questions. In short, he is approachable, compassionate, and a true friend to the NF2 community!

Dr. Chang has graciously accepted our invitation to come speak at this year’s NF Midwest Symposium and iNFo Fair on November 9th! He will be presenting during an NF2 breakout session on the following topics:

(1) The findings from the Synodos for the NF2 project and the proposed clinical trial with Takeda based on his lab’s findings.

(2) Plant-derived protein translation inhibitors as potential treatments for both NF1 and NF2 tumors as well as other sarcomas.

(3) New human vestibular schwannoma and meningioma cell lines established from patients’ tumors to enhance NF drug discovery.

Also, as a lead in to set the stage John Manth’s very important presentation on the exciting new NF2 Biosolutions Project, Dr. Chang will give us a preview of his involvement with the gene therapy project at Nationwide Children’s Hospital sponsored by NF2 Biosolutions of which he will be one of the investigators. What an amazing and informative session Symposium this is shaping up to be! We really hope to see you there!!


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