
2012 Marty Ginsberg Grant Awarded To University Of Chicago NF Clinic
The 2012 Marty Ginsberg Grant has been awarded to the University of Chicago’s Neurofibromatosis Program. The Neurofibromatosis (NF) Program at…
Read MoreThe 2012 Marty Ginsberg Grant has been awarded to the University of Chicago’s Neurofibromatosis Program. The Neurofibromatosis (NF) Program at…
Read MoreNeurofibromatosis Midwest is excited to announce that they have awarded an NF2 Research Grant to Dr. Brad Welling and Dr….
Read MoreNeurofibromatosis Midwest & Neurofibromatosis Northeast Unite to Fund NF Research Neurofibromatosis Northeast and Neurofibromatosis Midwest are pleased to announce that…
Read MoreA consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…
Read MoreIf you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
Read MoreIndiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1…
Read MoreThe Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
Read MoreIn 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…
Read MoreThe University of Wisconsin Milwaukee Dept. of Psychology (Bonnie Klein-Tasman, Ph.D.) is collaborating with the University of Chicago NF Program…
Read MoreIf you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…
Read More
© 2023 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.