42 Years of Care and Ensuring No One Fights Alone!

Research

Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

Read More

NF Registry

If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…

Read More

NF1 Washington University Registry

The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…

Read More

NF2 Clinical Trial

In 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…

Read More

Plexiform Drug Trial

If you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…

Read More

Learning Disabilities Trial

The University of Chicago Neurofibromatosis Program (Dr. Tonsgard), and the NF Center at Washington University, St. Louis (Dr. Gutmann) along…

Read More

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis


Visit Us
Follow Me
Tweet
Share