Quality of Life Study – Easy Online Survey
Indiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1 affects the patient’s health and well being. It will also help measure how well new treatments for NF1 are working. If you are an adult with NF1, a parent of a child with NF1, or a teen 14 years old or older please take the appropriate survey at www.surveymonkey.com/s/PDRVR6Y to help the NF cause.