Celebrating 35 Years


Video – Tumor Suppressor Research

A video released in January 2013 by the Congressionally Directed Medical Research Program (CDRMP) highlights the work of Dr. Karen Cichowski,…

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NF1 and Scoliosis Genetic Study

Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for  a study entitled:…

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NF1 and Breast Cancer Study

Call for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…

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Neurofibromatosis Network Edge Volume 2

Check out the newest edition of the Network Edge provided by the Neurofibromatosis Network, NF Midwest’s national affiliate. This science column provides…

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Neurofibromatosis Network Science Column

The Neurofibromatosis Network, NF Midwest’s national affiliate, has just unveiled their new science column called The Network Edge which will provide a…

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Special Neurofibromatosis Blood Draw

NF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…

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