Celebrating 35 Years

Add Your Name to Support NF Research!

Last week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support of NF research in the National Institutes of Health (NIH) and through the Congressionally Directed Medical Research (CDMRP) program that is administered by the Department of Defense (DOD).

We visited your Senators and Representatives and shared the stories of you and your loved ones affected by neurofibromatosis.

In Fiscal Year 16, we were able to secure $15 million through the CDMRP. For Fiscal Year 2017 (FY17) we are asking for $18 million!

NOW WE NEED YOU TO go to the link below to automatically contact your members in Congress asking them to support $18 million through the CDMRP and language in support of NF research through the National Institutes of Health.

  • Click the box below that says TAKE ACTION 4NF.
  • Go to SECTION 2 and fill in your contact information.

Take Action 4NF

An email will automatically be sent to your two Senators and your Representative with the message that is pre-filled in SECTION 1. Feel free to put your personal touch on the message if you’d like!

After you’re done be sure to SHARE this information and ask your friends to sign!

Comments (7)

  • Please continue funding for NF research. As a husband/father of 2 small children, who are also at risk of inheriting this condition, further research and development of a cure is needed for future generations. I urge you to continue funding. Thank you.

  • I am 63, have had NF1 all of my life, probably a moderate case, with many fibromas, especially on the chest area.

  • Nf needs more awareness and the financing it deserves. We the ones that have it our friends and families have put in so much effort just spreading awareness. It is more common than MS and cystic fibrosis yet and causes many problems and even death. Please help.

  • I am 28 years old I have NF type one I have a moderate case of NF type
    I have quite a few Fibromas in the chest area. I have about 4 tumor elbow on the back of my back
    I have one big one on the side of me and I have one big on my elbow.

  • Hi,

    I have neurofibromatosis. My life is greatly impacted by it on a day to day baises. Please help support and improve our lives. So.we can have a better tomorrow.

  • My husband lives with NF1 every day. He has multiple fibromas all over his body, especially on his back, which makes it very uncomfortable to lay down. I’d love for more research to be done to find out a cure for this. He struggles every day with aches and pains, makes it hard for him to work.

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