It's Time to Walk4NF!

Every step taken strengthens our community, fuels research and support, and reinforces that when we move forward together—side by side, step by step—No One Fights Alone!

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Ways to Meet and Learn from Others

Ways to Meet and Learn from Others

We Learn Best From Each Other. We Fight Best Together. Learn about the ways NF Midwest can connect you to community.

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You Can Make Difference

You Can Make Difference

There are many ways to give, beyond donating cash.

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Walk4NF

Build and support the NF/SWN community while raising funds and awareness. Then celebrate with a casual walk with serious fun! If you can’t make it to one of our walk events, create an event of your own that fits your timeline, your location, and is something YOU want to do!

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Building Something Bigger: Christina’s Commitment to the Columbia Walk4NF

In Columbia, Missouri, the Walk4NF has become something families count on each year. It’s where people show up, find each other, and realize they’re not the only ones navigating life with NF.  That kind of connection didn’t always exist for Christina.  Neurofibromatosis has been part of her family for generations. Her grandmother had it. Her father had it, along with several…

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CJ’s Dino Rompers: Walking for What Matters 

When CJ was born, he was already making an impression.  Courtney remembers working a long shift on the PCU floor before going into labor. CJ arrived three weeks early, strong-willed from the start. There were small details that stood out, like his slightly larger head, but at the time, he was simply their baby. They named him…

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Neurofibromatosis and schwannomatosis are complicated to say. Care, support, and navigating your journey with it doesn’t have to be. No one should fight alone. We’re here with you and in this together.

One in 2,000 People have some form of NF. They are rare genetic conditions.
3 Conditions NF is an umbrella terms for at least three condtions. Neurofibromtosis Type 1 (NF1), NF2-Related schwannomatosis (NF2-SWN), and other schwannomatosis (SWN)