Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in my family that has it. I’ve had two major surgeries, countless appointments, MRIs, horrible headaches, and struggles with schoolwork and friendships…all from having NF. It sucks, but it will not define me and it will not prevent me from living my life!
-Marissa

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