Join Us ! This year, we are planning for a proactive, interactive, and conversational iNFo Fair.
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Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
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September is National Hydrocephalus Awareness Month, a time to be iNFormed about this condition that affects people of all ages….
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Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
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Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
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Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
September is National Hydrocephalus Awareness Month, a time to be iNFormed about this condition that affects people of all ages….
Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
Parent’s May Earn $10. Kids 13-17 May Earn $210. Florida State University College of Medicine is conducting a study to…
Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
NF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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