43 Years of Care and Ensuring No One Fights Alone!

2025 iNFo Fair Saturday, October 25th in Naperville, IL

Join Us ! This year, we are planning for a proactive, interactive, and conversational iNFo Fair.

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Champions of the Fall 2026

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

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NF1-TED Study Needs Participants!

I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…

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iNFo Fair Recordings Posted

Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…

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My NF Guide Study

Guide If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the…

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Stay Informed with NF Midwest See All NF Posts

A Big Win For NF1-PN Patients in Europe

The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…

Champions of the Fall 2026

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

NF1-TED Study Needs Participants!

I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…

CTF Unveils New Genetics of NF Page

NF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…

Camp NF is July 13-July 19, 2025-Register NOW!

Started in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…

May is NF Awareness and Action Month

This May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…

Walk4NF 2025: Join NF Midwest and Make a Difference

NF Midwest is back with its Walk4NF events, bringing communities together to raise funds and awareness for neurofibromatosis (NF) and…

iNFo Fair Recordings Posted

Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…

NF1 Plexiform Interview (RTI Health)

RTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…

We Need Your Letters to Protect NF Research Funding

Once again, NF Midwest advocates will be in Washington, DC, to urge our Senators and Representatives to continue supporting research…

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