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Thank you for stopping by to learn about the disorders of neurofibromatosis (NF) and schwannomatosis (SWN). This includes NF type 1, NF type 2, and schwannomatosis.

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Neurofibromatosis (NF) and Schwannomatosis (SCHW) disorders are very complex. The complications vary greatly from person to person and change and become more problematic as people age. Here are just a FEW things you should know.

  • NF/SCHW are tumor disorders, however they do cause other issues that are non-tumor related.
  • NF/SCHW are genetic dominant genetic disorders and people who have it usually have around a 50% chance of passing it on to their children.
  • They are not recessive. If you have it, you have it – though a person maybe mildly affected.
  • Approximately 50% of people with these disorders DID NOT inherit it. That just confused your mind, didn’t it? This is because “mutations” in a gene can occur very early in development so that a newborn now has the disorder.
  • These disorders affect all races, ethnicities, genders equally and because of that crazy “mutation” thing above, anyone can be born with NF or SCHW.
  • Though considered rare disorders (together they affect approx. one in 2,500) there is a good change you know someone with NF or SCHW.

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