Connecting with others who understand your journey can make all the difference. Our events are a chance to build relationships, learn from experts, and have some fun with a community that cares. We host a variety of gatherings throughout the year across Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin.
Walk4NF Your Way 2026
You can still be a part of the 2026 Walk4NF movement! With our NF Your Way program, you can create a challenge for yourself like walking 50 miles in a month and invite your friends to join in or start a local Walk4NF, or even hike, dance, or get a treadmill alone or with friends!
When
Any Time, Any Day until Sept 30
Where
Anywhere
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NF Parent Conversations
Connecting with others who understand your journey can make all the difference. Our Parent Community Conversations offer a welcoming online space for parents and caregivers affected by NF to share experiences, ask questions, and build…
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NF1 Peer Conversations
Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…
Get to Know Our Signature Events

Volunteer at an Event
Our events are powered by the passion and dedication of our amazing volunteers. Whether you can help with setup, registration, or cheering on participants, your time makes a huge impact. It’s a rewarding way to meet new people and support the NF community.