Connecting with others who understand your journey can make all the difference. Our events are a chance to build relationships, learn from experts, and have some fun with a community that cares. We host a variety of gatherings throughout the year across Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin.

  • 7 Simple Strategies for Sibling Support

    Siblings of children with Neurofibromatosis play important roles in their families, and often experience similar concerns and opportunities as parents. This interactive session by Emily Holl, Director of the national Sibling Support Project, will present…

    When Tuesday April 21 7:00 pm – 8:00 pm Where Online Learn More

  • NF1 Peer Conversations

    Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…

    When Tuesday April 28 7:00 pm – 8:00 pm Where Online Learn More

  • Walk4NF Madison, WI

    Join us for food, music, a raffle, a silent auction, and a stroll through Middleton! Get ready for the annual Madison Walk4NF and support those with neurofibromatosis!

    When Saturday May 9 9:00 am – 1:00 am Where Capital Brewery Learn More

  • Walk4NF Indianapolis, IN

    Get ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Indianapolis!

    When Saturday May 16 9:00 am – 1:00 pm Where White River State Park Learn More

  • Walk4NF Columbia, MO

    Get ready for the annual Columbia Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Columbia!

    When Saturday May 30 9:00 am – 12:30 pm Where Gordon Shelter @ Stephens Lake Park Learn More

  • Walk4NF Naperville, IL

    Get ready for the annual Naperville Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Naperville!

    When Saturday June 6 8:30 am Where Riverwalk Grand Pavillion Learn More

  • Camp NF at Brainy Ridge

    A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, NF2-Related Schwannomatosis, and other Schwannomatosis. Medical staff, including physicians, nurses, social workers, and psychologists, are on-site 24 hours a day….

    When Sunday – Saturday July 19 – 25 Where Blue Ridge School Learn More

Get to Know Our Signature Events

Walk4NF

Join hundreds of NF heroes at our Walks4NF events! These family-friendly gatherings are a powerful way to raise awareness and funds that directly support our mission. Come walk with us and be a part of a community striding toward a better future.

May Awareness Month

Every May, we go all out for NF Awareness Month. It’s a time for our whole community to rally together through special events, online campaigns, and local gatherings to shine a light on neurofibromatosis and schwannomatosis.

iNFo Fair

Our iNFo Fairs bring together leading experts, individuals with NF, and their families for a day of learning and connection. These events are packed with valuable information on managing NF, the latest research, and ways to live your best life.

Volunteer at an Event

Our events are powered by the passion and dedication of our amazing volunteers. Whether you can help with setup, registration, or cheering on participants, your time makes a huge impact. It’s a rewarding way to meet new people and support the NF community.

Explore Volunteer Roles

Ready to Join Us?

There’s a place for you here. Take a look at our upcoming events and find the perfect opportunity to connect, learn, and celebrate with your NF Midwest community.

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