NF1 Washington University Registry
The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire will collect medical information to help physicians and researchers better understand the spectrum of medical problems found in children and adults. They have also established a one-of-a-kind NF1 Genome Project which is a DNA Bank that will collect blood samples from individuals with NF1. Learn more about how to participate in these promising projects at nfcenter.wustl.edu.