- NF Type 1
- NF1 Tumors
Living with Neurofibromatosis Type 1 (NF1) means staying informed about your health. One topic that can come up is gastrointestinal stromal tumors, or GISTs. While they can sound intimidating, understanding the basics is the first step in managing your health proactively. We’re here to provide clear, simple information to support you on your journey.
Knowing the Signs
GISTs can sometimes cause symptoms, while other times they may not. It’s helpful to be aware of potential signs, which can include:
- Bleeding (which may show up as blood in bowel movements)
- Anemia (low blood count)
- Abdominal pain or vomiting
- Bowel obstruction
Download Our GISTs Fact Sheet
To help our community understand this topic better, Dr. James Tonsgard of the University of Chicago Hospitals has shared his expertise in a helpful overview. Download the resource to learn more about what GISTs are, how they’re diagnosed, and what the future of research looks like.
Please remember: This resource should not be used as a substitute for professional medical care or advice. Always consult with a qualified healthcare professional about your specific situation.