- Be iNFormed
- General Education
- Video
- Video (Newer)
Patient Panel, NF Midwest iNFo Fair – October 2025
CHAPTERS
00:00 Opening and panel discussion
06:59 Why Patient Voices Matter in Research
12:16 Don’t Let the System Set the Ceiling
15:59 Ask for the Accommodations Your Child Needs
19:16 Technology as an Accommodation
23:59 Advocacy Becomes Their Voice
26:48 Care for the Advocate and the Whole Family
28:51 Start Preparing Before the Teen Years