2019 Health Supervision for Children With Neurofibromatosis Type 1

  • Children NF1
  • General Care

Navigating a neurofibromatosis type 1 (NF1) diagnosis for your child can feel overwhelming, but you’re not alone. Staying informed about the latest health recommendations is a powerful way to advocate for your child’s care. These clinical practice guidelines from the American Academy of Pediatrics offer a roadmap for monitoring your child’s health and development, helping you partner with your medical team to provide the best possible support.

Health-Supervision-in-Children-with-NF1-2018-2Download Guidelines

What’s Inside the Guidelines?

This report provides a comprehensive overview for families and clinicians, covering the key aspects of care for a child with NF1.

Diagnosis & Monitoring

Learn about the clinical criteria for an NF1 diagnosis and the importance of regular check-ups to monitor for new developments.

Clinical Manifestations

Get details on the common features of NF1 and how they can change as your child grows.

Intervention & Support

Discover recommendations for interventions that can maximize your child’s health and quality of life.

Inheritance Patterns

Understand how NF1 is passed down and what it means for your family.

These guidelines were published in the May 2019 issue of Pediatrics, the official journal of the American Academy of Pediatrics.

American Academy of Pediatrics

You’re Part of a Community

Having the right information is the first step. Connecting with other families and our support team is the next. Explore our resources for newly diagnosed families and find the support your family deserves.

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