We May Be Rare, But Our Voices Are Strong!
Every story matters. Whether you’re an adult living with neurofibromatosis or a parent sharing your child’s experience, your story helps others understand what NF really means.
NF Midwest is collecting stories year-round to spotlight the incredible strength and spirit of our community. These stories may appear on our website, social media, or newsletters, celebrating the faces and voices behind NF.
We can’t wait to hear from you!. Share your name and email below, and we’ll reach out to learn more about your story and how you’d like to be featured!
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.