Living with neurofibromatosis or schwannomatosis can feel isolating, but you don’t have to navigate it alone. NF Midwest is a vibrant community of individuals, families, and caregivers across Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin who are here to offer support, share experiences, and lift each other up.
There are many ways to join the NF Midwest community, and you don’t have to do everything at once. Many people begin with just one step and add more over time.
If you’re new to NF or learning more, requesting our free iNFo packet is a great place to begin. You can also complete our ongoing Household Survey if you’d like us to better understand you and your family’s needs. Both options automatically keep you connected with our email updates.
Ways to Join and Stay Connected
Learn and share your needs
- Request the free iNFo packet if you’re new to NF or looking for reliable information
- Complete the Household Survey to help us understand your needs and shape our programs
Connect with others
- Join our private Facebook group to connect with people who understand
- Follow NF Midwest on Facebook and Instagram for updates, events, and stories
Stay in the loop
- Make sure we have your current email address
- Opt in to SMS updates if you’d like occasional text reminders about opportunities and events
More Ways to Be Part of Our Community
Your voice, your time, and your experiences are what make our community strong. Here are a few other ways you can get involved and make a difference.