Are you a young adult ready to use your voice to create change for the neurofibromatosis and schwannomatosis community? The NF Young Adult Leadership Program is an incredible opportunity to grow as a leader and advocate. This program is a special collaboration between NF Midwest, Littlest Tumor Foundation, and Texas NF.

What You’ll Do

During this exciting 5-day program in Washington, D.C., you’ll get a firsthand look at how advocacy works. You will have the chance to:

  • Participate in engaging workshops on leadership and advocacy
  • Meet with influential members of Congress
  • Attend briefings in both the House and Senate
  • Share your story during visits to Congressional offices

What to Expect

Develop Critical Skills

Learn from experts in the field and gain invaluable mentorship and leadership skills.

Advocate for NF Research

Make your voice heard on Capitol Hill and help drive progress in finding a cure for NF.

Educate Congress

Meet with lawmakers and share your personal story to raise crucial awareness about NF.

Program Details

The program includes a trip to Washington DC that usually occurs the first weekend in January and runs from Monday through Friday. The application process generally opens mid to late summer.

We believe every passionate young adult should have the chance to attend.

Become the Next Generation of NF Leaders

We’re seeking motivated young adults who are ready to make a positive impact. Join us in creating a brighter future for those affected by neurofibromatosis and schwannomatosis.

Email Us for Information

Our Partners

This program is a collaboration with the Littlest Tumor Foundation, Texas NF, and NF Midwest. Littlest Tumor Foundation is the lead on this program. Please, let us know if you apply.