Scoliosis in NF1

  • NF Type 1

Christopher Moertel, MD

Living with Neurofibromatosis Type 1 (NF1) sometimes comes with additional health considerations, and one that we see often in our community is scoliosis, or a curvature of the spine. We understand that this can bring up a lot of questions, and our goal is to provide you with clear, supportive information to help you navigate your journey.

To help families better understand this condition, we’re sharing a helpful resource that breaks down what you need to know about scoliosis in connection with NF1. Below is a brief summary of the information you’ll find in the article.

Key Information on Scoliosis and NF1

Early Detection is Key

Scoliosis often appears in children with NF1 during periods of growth. Regular check-ups with an NF specialist are crucial for monitoring spine health and catching any changes early.

Treatment Options Vary

The approach to managing scoliosis depends on the severity of the curve. Options can range from observation and physical therapy to bracing or surgery. Your care team will help determine the best path forward.

Download the Full Guide

For a more in-depth look at scoliosis in NF1, including diagrams and detailed explanations, you can download the full article here.

Scoliosis-in-NeurofibromatosisDownload

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