Celebrating 35 Years


Caitlin’s Story

WARNING THIS MAY BE DIFFICULT TO READ. A few weeks ago we shared the story of Ina, an older woman…

Read More

Top 5 Great Steps 4NF Fundraisers

We have some Great Steps 4NF teams that are really making a difference for neurofibromatosis by using Firstgiving.com/nf as a…

Read More

Welcome To Holland

Many years ago when my children were young someone sent me this essay by Emily Perl Kingsley, the mother of…

Read More

Great News Article on Neurofibromatosis

Members of NF Midwest’s Central Missouri Group succeeded in getting fantastic article written about neurofibromatosis in the Columbia Daily Tribune. The…

Read More

Neurofibromatosis Champions Challenge

We wrote this week about all the ways NF Champions can forward neurofibromatosis through public speaking, media connections, local events…

Read More

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis