The Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was inspired by NF Mid-Atlantic with their series of interviews on the subject last year.
There has been so little research on the psycho-social ramifications of living with this incurable, variable, often disfiguring, and potentially devastating disease.
Stevenson University applied for and received a small grant to produce a survey and will analyze it for publication.
The survey is completely anonymous and takes 5 minutes. Of course they want as many people as possible so please complete this and share with others with NF so there will be an accurate assessment of the needs. This will be a great help for people with NF.