Letters Needed for New Code for Mass Removal of NF Tumors
We have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one who is. Some of you may have heard of an “electrodessication” procedure that is performed by Dr. Weinberg in New York and a few plastic surgeons in the US. This procedure is different from electrodessication that may be done by your local plastic surgeon or dermatologist and there have been problems distinguishing the difference and getting insurance coverage.
To correct this problem we are attempting to get a new CPT (Current Procedural Terminology) code approved by the American Medical Association for this type of electrosurgery. To begin this process a petition will be filed by Dr. Lawrence Taylor on February 7 th . We need people to share their stories and the need for this procedure. Letters of support must be sent BEFORE the petition arrives on Feb 7th. We have attached a letter as guidance.
LETTERS ARE NO LONGER BEING ACCEPTED. Also, we believe this code will not be approved at this time, but will continue to work towards improving the care of adults with NF. This includes pursuing options like electrodessication and this CPT code if necessary. We know that this effort and everyone’s letters has only moved the cause forward.