About NF

  • General Education
  • NF Type 1
  • NF2-Related Schwannomatosis
  • Schwannomatosis

Washington University School of Medicine

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Neurofibromatosis, or NF, is a group of genetic conditions that can cause tumors to grow on nerves anywhere in the brain and body. It can look different for everyone. While about half of the people with NF inherit it from a parent, it can also appear for the first time in a family. NF affects people of all backgrounds, races, and genders, and is often diagnosed in childhood or early adulthood.

Understanding the Types of NF

NF is an umbrella term for three distinct types. While they share a name, each has its own unique characteristics and effects. You can learn more about the Types of NF on our website.

Neurofibromatosis Type 1 (NF1)

NF1 is one of the most common genetic conditions in the world, found in about one of every 3,000 births. For many, the symptoms are mild, and people live full, productive lives. For others, the condition can be more challenging and may require more significant medical care.

NF2-Related Schwannomatosis (NF2)

NF2 affects about 1 in 40,000 people. Symptoms often first appear during the late teens or early twenties, though they can develop at any age. This condition is characterized by the growth of benign tumors on the nerves responsible for hearing and balance.

Schwannomatosis (SWN)

Schwannomatosis is a rare type of NF that was only recently identified. It causes the growth of tumors called schwannomas on cranial, spinal, and peripheral nerves. These tumors can often cause chronic pain, which is a primary symptom for many.

You’re Not Alone in Your NF Journey

Whether you or a loved one is newly diagnosed or has been living with NF for years, our community is here to provide support, resources, and connection.

Support for the Newly Diagnosed