- Be iNFormed
- Children NF1
- NF Type 1
Kimberly Marrs, B.S., & Heather Thompson, Ph.D., CCC-SLP
Living with Neurofibromatosis Type 1 (NF1) can sometimes bring unexpected challenges, including issues with speech. One such condition is Velopharyngeal Insufficiency, or VPI, which can affect how clearly a person speaks. We’ve put together some information to help our community understand what VPI is and how it relates to NF1.
Understanding VPI and its Connection to NF1
What is Velopharyngeal Insufficiency (VPI)?
VPI is a speech disorder that happens when the soft palate (the back of the roof of your mouth) doesn’t close properly against the back of the throat during speech. This can cause speech to sound nasal, sometimes described as hypernasality.
The Link Between VPI and NF1
Research has shown a connection between VPI and NF1, with some studies finding it in a notable percentage of individuals with NF1. While the exact cause is still being studied, it’s an important aspect of care to be aware of.
Diagnosis and Treatment
If you have concerns, a speech-language pathologist or an ear, nose, and throat (ENT) doctor can perform an evaluation. Treatment options vary depending on the cause and can range from a special speech appliance to surgery, often followed by speech therapy.
Why Early Evaluation Matters
Getting an evaluation is important because VPI can make it harder for others to understand what’s being said. Addressing communication challenges early can help prevent social or emotional concerns and build confidence at school, work, and in life.
Download Our Full Resource
For a more detailed overview, including information on diagnosis, treatment, and references to research, you can download the full resource document prepared by Kimberly Marrs, B.S., & Heather Thompson, Ph.D., CCC-SLP.
Please note: This resource should not be used as a substitute for professional medical care or advice. Always consult with a qualified healthcare professional for any health concerns.