NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and Missouri.
NF Midwest C.A.R.E.S.!
Our History
In 1981, determined to improve the lives of their children a group of dedicated and concerned parents came together to form what would become Neurofibromatosis Midwest (NF Midwest). On December 31, 1981 they celebrated the coming New Year by signing the original incorporation letter as the Illinois Neurofibromatosis Foundation.
At the time, very little was known about neurofibromatosis. There were no clinics, research, educational material or systems of support. But the tenacity and strength of these original NF families laid the groundwork to become a part of a great collaboration which led to monumental progress in care, awareness, research, education and support.
Today, because of their foresight and the hard work and dedication of thousands of families and volunteers across our area, NF Midwest is the only local/regional organization offering care, support and hope to NF adults, children and families.
We are dependent on funds raised by special events, foundations and individual donations. Support us in the fight against neurofibromatosis by visiting our Get Involved page or Donation page.
NF Midwest began when a small group of families came together at a time when there was little care, limited research, and virtually no support or education for people living with NF. They were determined to do whatever they could, sometimes everything they could, to change that reality. From the very beginning, their vision has been, and remains, about building community and ensuring that no one feels alone, as they once did.
Diana Haberkamp, Director (2008 to Present)