Removing Neurofibromas

  • Adult NF1
  • Be iNFormed
  • Insurance and Financial Assistance
  • NF1 Cutaneous Neurofibromas

by NF Midwest with contributions from Andre Panossian, PhD; Hubert Weinberg, MD; Edward Melmed, MD; Juliana Hansen, MD; Joel Solomon, MD; & Lawrence Taylor, MD


If you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always covered by insurance, Medicare and Medicaid if the paperwork filed by the physician is properly coded and documented.

As of October 1, 2015 the United States has transitioned from ICD-9 (International Code of Diseases) to updated ICD-10 codes. This has made our previously published information on removing neurofibromas slightly incorrect. We have published new information along with the commonly used procedural codes (CPT Codes) here.

Understanding and having this information on hand may prevent, or solve insurance, headaches.