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Neurofibromatosis Midwest


Jeanette, Liz and Jenny at the NF Midwest Symposium


Today is a sad day for me, my last day at NF Midwest. I have taken a position closer to home, allowing me to spend more time with family and (hopefully) see most of my son’s bowling meets. I will truly miss all the wonderful people that I have become friends with in the NF Read the Rest…

You're a Good Man, Steve Griest!

To a Good Man – Steve Griest!

We love and appreciate ALL of our volunteers and supporters, but we are especially in awe and inspired by those very exceptional ones who take an extra-large step forward even though they have no family with neurofibromatosis.

Steve Griest has been one of these truly special supporters. Since the inception of Great Steps in Naperville over Read the Rest…

Sam Oswald poses on stage with ClusterPluck, one of the bands that performed at SamJam, Unplugged on the Prairie, September 27

SamJam 4NF Raises $22,000 for Neurofibromatosis!

The sounds of progressive bluegrass and contemporary acoustic music filled the air on September 27, as hundreds of people enjoyed a beautiful fall day at SamJam, Unplugged on the Prairie, held at the Macoupin County Fairgrounds.  The 12-hour music event was held in honor of Sam Oswald, Carlinville, who has dealt with Read the Rest…