NF1 PN Educational Event/An introduction to managing NF1 PN Educational Event/
Get the basics of treating NF1 PN from an Alexion Patient Education Manager. Hear about support options available to you…
Read MoreGet the basics of treating NF1 PN from an Alexion Patient Education Manager. Hear about support options available to you…
Read MoreLearn about Koselugo and the results seen in children with NF1 PN. Gain access to support programs to help you…
Read MoreGain a new perspective on caring for a child with NF1 PN from this presentation. Learn more about NF1 PN,…
Read MoreJoin NF Midwest and Children’s Tumor Foundation for appetizers and wonderful conversation to celebrate the kickoff to NF Awareness month….
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreThis Year’s Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October…
Read MoreThere’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreWe’re thrilled to announce the launch of our virtual open office hours! This is your chance to connect with me…
Read MoreA 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and…
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