
NF Type 1 and Cancer Risk and Screening
An article by Sharon Reynolds from the National Cancer Institue highlights the importance of people with neurofibromatosis type 1(NF1) to…
Read MoreCheck out past blogs and news!
An article by Sharon Reynolds from the National Cancer Institue highlights the importance of people with neurofibromatosis type 1(NF1) to…
Read MoreNovember 22nd is national Love Your Freckles Day! Growing up I didn’t know much about freckles other than the more…
Read MoreResearchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…
Read MoreWe have a research participation opportunity for families of children with NF1 ages 12 through 17. Do you have a…
Read MoreWhat a wonderful morning in Columbia, Missouri! On May 7th, a sunny spring Saturday, we gathered for the 3rd Walk4NF…
Read MoreNF Midwest has awarded the 2022 scholarship recipients! Find out who’s been granted a scholarship plus the changes we’ve made…
Read MoreHello everyone! We hope you are doing well. Our friends at Brainy Camps are working hard to ensure Camp New…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreDIY Fundraising Events are a great way to raise funds and awareness all while having fun! DIY Events can be…
Read MoreOn February 9th and 10th, NF Midwest executive director Diana Haberkamp and others will be VIRTUALLY visiting with staffers of…
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