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NF Midwest News

Check out past blogs and news!

NF Midwest News/Blog

Maverick – A Face of NF

Maverick is the first in his family to be diagnosed with NF1. He started showing symptoms at 2 months old….

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Karissa- A Face of NF

Hi I’m Karissa, I’m 27 and I have NF1. My story may be a little long, but sometimes that’s the…

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Conor- A Face of NF

My little guy’s name is Conor and he is 1 year-old and has been diagnosed with NF Type 1.  Conor’s…

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Rory – A Face of NF

Aurorah (Rory), now age 9, was diagnosed with neurofibromatosis type 1 shortly after her sixth birthday.  She was born with…

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Benjamin – A Face of NF

Our three-year-old  son, Benjamin, was diagnosed with Neurofibromatosis Type 1 one year ago due to multiple cafe-au-lait spots (birthmarks) and…

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Joel – A Face of NF

This is my son Joel. He was born with neurofibromatosis type 1.  Neurofibromatosis (NF) is a genetic disorder of the…

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Jackson – A Face of NF

Hi! My name is Jackson and I’m 10 years old!! I was diagnosed with NF1 at 18 months old. It’s…

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Eli – A Face of NF

When Eli was three years old, he was diagnosed with neurofibromatosis type 1, something we had never heard of before….

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Wyatt – A Face of NF

Wyatt was diagnosed with NF type 1 when he was 2 years old. He will be turning 13 years old…

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