NF1 Washington University Registry
The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
Read MoreCheck out past blogs and news!
The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
Read MoreIn 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…
Read MoreThe University of Wisconsin Milwaukee Dept. of Psychology (Bonnie Klein-Tasman, Ph.D.) is collaborating with the University of Chicago NF Program…
Read MoreIf you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…
Read MoreThe University of Chicago Neurofibromatosis Program (Dr. Tonsgard), and the NF Center at Washington University, St. Louis (Dr. Gutmann) along…
Read MoreNF Midwest is proud to have a group of energetic members that are running for the NF cause. Help our…
Read MoreOur Spring 2012 Newsletter is available online and full of iNFormation! If you aren’t already on our email list and…
Read MoreThis year there are at least 6 opportunities in the Midwest to put your best foot forward and raise awareness…
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