2024 Walk4NF
Stroll, Celebrate, Connect
Columbia, MO April 20 | Madison, WI May 11
Indianapolis, IN May 18 | Naperville, IL June 8
SIGN-UP NOW!Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
Over
100,000
Americans
suffer from Neurofibromatosis
We support
6 states
13 clinics
1.5 million
In Research & Care
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
February 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Legends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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