
Fundraiser Feature : Jessica and Ellies Crew
Let’s say hello to Jessica and her family! Her team, Ellie’s Crew, has been hard at work this year! Jessica…
Read MoreCheck out past blogs and news!
Let’s say hello to Jessica and her family! Her team, Ellie’s Crew, has been hard at work this year! Jessica…
Read MoreDue to the pandemic there will be NO NF Midwest Symposium and iNFo Fair this year. We may present short…
Read MoreCheck out our Summer 2020 NF Midwest Newsletter! SUMMER 2020 NEWSLETTER PDF The highlights of this issue include… Page 1…
Read MoreMeet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…
Read MoreTHIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…
Read MoreUPDATE: PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!! This date is the last date for registration information…
Read MoreUPDATE: On Thursday May 28th it was announced that due to the continued COVID-19 restrictions the 2020 John Deere Classic…
Read MoreAre you a young adult living with NF and want to make a difference in your community? In addition to…
Read MoreWe love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…
Read MoreKOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…
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