
We Need Your Personal Letters for Congress
February 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
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February 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreInsurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read MoreOptic Pathway Gliomas are often referred to as OPG and may affect those with neurofibromatosis type1 (NF1). In most cases…
Read More$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill…
Read MoreWe’re putting 2020 through 2022 in the review mirror and looking forward to an amazing 2023. Honestly, it’s been a…
Read MoreNeurofibromatosis Midwest is very excited to have Sarah Selogic join our team as our Care and Outreach Coordinator. Sarah is…
Read MoreOver 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have…
Read MoreMany have heard the expression “It’s not what you know. It’s who you know.” That rings true when it comes…
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