
NF Study of Genetic Mutations
Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
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Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
Read MoreNF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by…
Read MoreIf you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
Read MoreAn update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
Read MoreAre you a young adult living with NF and want to make a difference in your community? In addition to…
Read MoreCamp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
Read MoreOnline Harvard study to help teens learn Stress and Symptom Management Skills NOTE: PLEASE CONTACT THE RESEARCHERS DIRECTLY TO PARTICIPATE-NF…
Read MoreThe Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…
Read MoreNF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…
Read MoreThe DOD NF Research Program (NFRP) is looking for consumer reviewers. The Department of Defense, Neurofibromatosis Research Program Overview The…
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