
RJ – A Face of NF
We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
I was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Growing up I always knew I was different. I had spots all over my body. I actually thought for…
I have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…
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