
2021 Scholarship Applications Now Being Accepted
If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Optic pathway gliomas are benign (low grade) pilocytic tumors. They may involve any location in the optic pathway, starting on…
People who themselves have been diagnosed with NF1, NF2 and Schwannomatosis, or who have a child with one of these…
Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…
UPDATE: PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!! This date is the last date for registration information…
We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…
KOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…
We want you to know that we are working from home to do anything we can to continue to support you…
The hearts and thoughts of the NF Midwest staff, board, and community are with people all over the world who…
Below are answers to many of the frequently asked questions regarding the COVID stimulus packet. We hope this helps our…
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