Celebrating 41 Years

While the Kids are Home Learning You Should Too

We want you to know that we are working from home to do anything we can to continue to support you and your families in this extremely challenging time for our country and the world.  One of the biggest challenges we are hearing about is trying to keep our kids engaged in their school assignments and home schooling, in general. Most schools have provided assignments for students while parents are placed in the role of “Home Teacher”, which is a new role for many. You might already have assignments completed and are searching for new things to keep your family busy other than Netflix or playing Fortnight.

Perhaps you’d like to join the kids and do a little learning as well?

If so, we have several learning resources on our NF Midwest website. If you have not been there in a while, or if you have never explored that part of our website, you’ll find very informative articles and even some webinars, all of which you can download to view at your leisure. Simply go to www.nfmidwest.org/learn.

When you click on that link, it will offer you sections on finding a doctor and information on NF1, NF2, and Schwannomatosis. You’ll also find a link to our be iNFormed database. Be iNFormed material usually consists of articles about various complications and concerns of NF in which NF Midwest has invited exthe “new math”.

Our work continues! We’re constantly seeking to add content and update existing informatiperts to write about in general terms for the NF Midwest community. They’re easy to read…so it’s not like you’re trying to teach your kids on as we know an educated community is essential to good care.  In fact, we have two articles that we published in March . One is from Dr. Andrea Gross on Malignant Nerve Sheath Tumors (MNPSTs) in NF Type 1 which can be found here. Another article is by Dr. James Tonsgard on Gastrointestinal Stromal Tumors (GISTs) in NF Type 1 which can be found here.

You’ll also find several webinars that you can watch in addition to other resources such as  brochures, information on working with your insurers, and information on the NF Clinics in our region.

We urge you to take advantage of the information that we have compiled and that you find things of interest there.

Stay strong as we all navigate through what we all hope to be a temporary situation for all of us and stay healthy!! We’re all in this together and no one fights alone!

All the best,

The Staff and Board of NF Midwest

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