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NF Midwest News

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NF Midwest News/Blog

NF1 Washington University Registry

The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…

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NF2 Clinical Trial

In 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…

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Plexiform Drug Trial

If you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…

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Learning Disabilities Trial

The University of Chicago Neurofibromatosis Program (Dr. Tonsgard), and the NF Center at Washington University, St. Louis (Dr. Gutmann) along…

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Run 4NF 2012 Runners

NF Midwest is proud to have a group of energetic members that are running for the NF cause.  Help our…

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NF Spring Newsletter

Our Spring 2012 Newsletter is available online and full of iNFormation! If you aren’t already on our email list and…

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