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What is an “NF Doctor”?

There is no specific definition of an “NF Doctor”. We prefer doctors who see many patients with NF and are…

How is NF1 treated?

There is no cure or treatment for NF1. Some tumors may be removed, but others, such as plexiforms may be…

How do doctors diagnose NF1?

Most of the time, NF1 is diagnosed by its physical symptoms (tumors or café- au-lait spots), or by a family…

How do people get NF1?

Approximately half (50%) of all people with neurofibromatosis type 1 inherit the disorder. It is inherited in an autosomal dominant…

What are the symptoms of NF1?

The symptoms and complications of neurofibromatosis type 1 vary widely from patient to patient. However, beginning in early childhood, most…

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