What is an “NF Doctor”?
There is no specific definition of an “NF Doctor”. We prefer doctors who see many patients with NF and are also involved in NF research and attend NF conferences. These doctors are generally, but not always, neurologists or geneticists. They treat hundreds of patients with NF1 and thus have a high degree of experience and expertise. (The number of patients seen with NF2 and schwannomatosis will naturally be a lot less). That being said, there are a number of well established “NF Doctors”/Clinics that NF Midwest has supported and worked with for many years. They are all also readily recognized as being involved in the national effort for NF care through involvement in conferences, clinical trials and studies. We list those doctors and clinics here.