
Spread the Word in May!
May is Neurofibromatosis (NF) Awareness Month and Sunday, May 17th is NF Awareness Day. While the NF cause needs you…
May is Neurofibromatosis (NF) Awareness Month and Sunday, May 17th is NF Awareness Day. While the NF cause needs you…
What Should You Know? PDF Version Seizures occur in people with Neurofibromatosis type 1 more commonly than people who don’t…
People with neurofibromatosis type 1 have a higher incidence of many different complications. Tumor growth and learning disabilities are especially…
The NF Midwest Board has voted to start a Scholarship Program with funds left to NF Midwest through a charitable…
At our annual symposium on October 25, 2014 Long-Sheng Chang, Phd from The Research Institute at Nationwide Children’s Hospital and…
At NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
At our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
Every year NF Midwest funds many kids with neurofibromatosis to go to Camp New Friends in West Virginia. We are…
If you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…
Written for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
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