Celebrating 35 Years

be iNFormed – Transitioning to Adult Care

At our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on Transitioning to Adult Care. Because neurofibromatosis is a lifelong and complicated disorder this is an especially important topic. It is critical that as children with NF become adults they are able to take responsibility for their care and understand all that it entails.

We have provided a somewhat rough, but readable transcript from Dr. Shah’s presentation as well as his slides.



Be sure to check out other resources for Neurofibromatosis Type 1, Neurofibromatosis Type 2 or Schwannomatosis.



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