Celebrating 35 Years

Stay on Top of Neurofibromatosis News and Updates

There are many ways to stay on top of all neurofibromatosis news and Neurofibromatosis Midwest.

Twitter text updates – One of the easiest and very non-intrusive ways is to text “follow nfmidwest” to 40404. This will sign you up for Twitter updates to your phone. You will receive quick text updates on your phone, only from Neurofibromatosis Midwest, about neurofibromatosis or news about NF Midwest events.  Occaionally you may receive a text twice in one day but usually you’ll get a few messages per week.

Google Alerts – Set up a query at www.google.com/alerts for the word “neurofibromatosis” and Google will automatically email you the latest relevant Google results (web, news, etc.) based on your queries. You can set it up for daily updates, weekly updates or as it happens.

Twitter Alerts – Set-up a similar alert for Twitter results www.twilert.com/

Like us at Facebook.com/nfmidwest – “Like” us and you will receive our posts on your Facebook page. Even if you don’t like to use Facebook, you should consider setting up a page. You don’t have to “friend” people.

Join our NF Midwest Facebook Group – If you have an interest in neurofibromatosis and are in our regional coverage area, you may request to join our Facebook group here. Click “Join Group” in the upper right corner. This group is used to meet and interact with others in our area and to participate more closely in NF Midwest.

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