Celebrating 35 Years

Libby Returns to the Doctors

NF Midwest community member, Libby Huffer, will appear for the third time on The Doctors on Monday, January 15th. Check your local guides for the time! The Doctors is a talk show in which team of medical professionals discusses a wide range of health-related topics.

Like many adults with neurofibromatosis type 1 (NF1), Libby has thousands of tumors, or dermal neurofibromas, on her skin. This is one of many possible complications with NF1.

In 2016, Libby had hundreds of tumors removed and the whole experience was shared on the show. This new episode will show a recent visit for additional surgery, plus a makeover reveal!

Libby is the founder of the public Facebook group Faces of Neurofibromatosis which dramatically expands on NF Midwest’s Faces of NF brochure by allowing people from around the world share their “faces” and stories with the world. The Faces of Neurofibromatosis group now has almost 5,000 members who all are affected by NF!  The group rallies around the motto that  “if we’re not seen, we can’t be heard”!

Watch a preview of Monday’s episode HERE, including a priceless reaction from Libby’s daughter Lindsey, from the “big reveal”.  We can’t wait to see it!

Watch past episodes of The Doctors with Libby below.

Video: My Entire Body is Covered in Tumors

Video: Living Covered in Tumors

Video: Women Covered in Tumors Returns

Comments (7)

  • To Libby, this is Karin Goth- Costner and I do have nf1 and I am in your group/ Faces of Neurofibromatosis!! I have been fighting with my phone over my correct name on my accounts and getting no where. I have been logging out and since I have it bad with short term memory and my vision is causing me trouble, I am screwed, sorry 😐!

    • I see that you are a member of “Faces” and have seen you post a few times. Have you tried logging out of FB and then back in and then try going back to the page. A few others have had to do this.

  • I am an adult female that has had many complications throughout my lifecdue to NF.
    I have a 31 year old daughter and an 11 year old Granddaughter that also have NF. MY Daughter has had many complications was well as facial reconstruction surgery. I suffer from heart conditions. Thankfully my 11 granddaughter is doing well. But like her mother and her nana(me) she suffers from migraines. My grandson is ok the twins both girls we will have to see they just turned a year old in December. I wish I could have many of mine removed.

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