(Topics are NOT COMPLETE AND NOT IN ORDER of the actual schedule and may be subject to change. We are still arranging speakers.)

• NF1 OVERVIEW –

(We are still working tables, but look for there to be a lot of information. We will have a table time where all speakers will be available for more discussion)

During a special “table time” and other breaks you will be able to visit the areas that interest you and talk to an expert or advocate. The following are the tables we hope to have available. We will be adding more.

• Participating in Research
• Pain
• Learning Disabilities and School Issues
• NF Clinics
• Making a Difference—Raising Funds and Awareness

Children age 5 to 17 are welcome to come and participate in our kids’ groups. They’ll enjoy a day of fun, friendship, and food! Cost is $10 for children over 12. Children ages 5 to 11 are free.

Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.

If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.

We are unable to refund any tickets purchased.

This is an event meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons but don’t have a connection to NF, please contact us via email at info@nfmidwest.org or by calling 630-945-3562.

A block of rooms is available at the Chicago Marriott Northwest/Hoffman Estates for $89 a night. A shuttle can take you to and from the venue if needed. You can make a reservation here or call (847) 645-9500 and ask for the NF Midwest group rate.

If you’d like to attend but need financial assistance or additional help getting to the event, please call 630-945-3562 or email .