be informed!

Join us for an exciting day in which you will learn from the experts and share with the experienced about neurofibromatosis from about the latest progress in NF research, current treatment options, and practical advice for living with NF.

8:00 – 9:00 am Registration, Continental Breakfast, and Socializing

CART (Captioning will be provided for MOST sessions. Email us for more info at info@nfmidwest.org)

SCHEDULED PRESENTATIONS

(Topics are NOT in order of the actual schedule and may be subject to change)

We are still working on presenters and topics. So far we have…

• Dr.  Christopher Moertel, MD, Pediatric Neuro-Oncologist with University of Minnesota NF Clinic scheduled to attend and talk about NF1 as well as scoliosis in NF1. Also, Dr. Jason Marker,  a family practice and primary care physician from Indiana
• Dr. Jason Marker,  a family practice and primary care physician from Indiana will discuss h “what to do if your primary care doctor doesn’t know enough about NF”.
• Dena Regalado-Hasselberg, a school psychologist and a parent of a child with Nf, will meet with parents to give practical tips and information on dealing with the schools.

We hope to have a panel discussion about adult care and how to improve on it.

INFORMATION TABLES

(We are still working tables, but look for there to be a lot of information. We will have a table time where all speakers will be available for more discussion)

During a special “table time” and other breaks you will be able to visit the areas that interest you and talk to an expert or advocate. The following are tables we hope to have available. We will be adding more.

–  Participating in Research

–  Learning Disabilities and School Issues

–  NF Clinics

–  Making a Difference—Raising Funds and Awareness

–  Parents of Children with NF

–  Adults with NF

KIDS GROUP

Children age 5 to 17 are welcome to come and participate in our kids’ groups. They’ll enjoy a day of fun, friendship, and food! Cost is $10 for children over 12. Children ages 5 to 11 are free.

REGISTRATION

Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.

If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.

We are unable to refund any tickets purchased.

This is an event meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons but don’t have a connection to NF, please contact us via email at info@nfmidwest.org or by calling 630-945-3562.

FINANCIAL ASSISTANCE OR OTHER ASSISTANCE

If you’d like to attend but need financial assistance or additional help getting to the event, please call 630-945-3562 or email .