Join us for an exciting day in which you will learn from the experts and share experiences about neurofibromatosis, including the latest progress in NF research, current treatment options, and practical advice for living with NF. We have scheduled presenters, but we also provide tables of iNFormation and build in time for people to meet and talk with others including our experts and presenters.
8:00 – 9:00 am Check-in, Continental Breakfast, and Socializing
CART (Captioning will be provided for MOST sessions. Email us for more info at )
We will also be holding a “gathering” on Friday night. We haven’t firmed up what that will be, but it will be a time to get together with others who arrived early or live in the area and want to meet.
Financial assistance to attend NF Midwest’s Symposium is available. Please email . Include a description of your financial need and how you hope to benefit from attending.
Topics are NOT IN ORDER of the actual schedule and may be subject to change. There will also be opportunities that aren’t listed here for meeting and talking with others.
(We are still working tables, but look for there to be a lot of information. We will have a table time where all speakers will be available for more discussion)
During a special “table time” and other breaks you will be able to visit the areas that interest you and talk to an expert or advocate. The following are the tables we hope to have available. We will be adding more.
Children age 5 to 17 are welcome to come and participate in our kids’ groups. They’ll enjoy a day of fun, friendship, and food! Cost is $10 for children ages 13 to 17. Children ages 5 to 12 are free.
Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.
If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.
We are unable to refund any tickets purchased.
This is an event meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons but don’t have a connection to NF, please contact us via email at or by calling 630-945-3562.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.