Don’t miss this opportunity to meet, mingle and learn!
Join us for an exciting day in which you will learn from the experts and share experiences about neurofibromatosis, including the latest progress in NF research, current treatment options, and practical advice for living with NF.
Registration is not open, but please save the date. Topics and presenters have not been scheduled yet. Please email with your suggestions.
8:00 – 9:00 am Check-in, Continental Breakfast, and Socializing
CART (Captioning will be provided for MOST sessions. Email us for more info at email@example.com)
(Topics are NOT COMPLETE AND NOT IN ORDER of the actual schedule and may be subject to change. We are still arranging speakers.)
(We are still working tables, but look for there to be a lot of information. We will have a table time where all speakers will be available for more discussion)
During a special “table time” and other breaks you will be able to visit the areas that interest you and talk to an expert or advocate. The following are the tables we hope to have available. We will be adding more.
Children age 5 to 17 are welcome to come and participate in our kids’ groups. They’ll enjoy a day of fun, friendship, and food! Cost is $10 for children over 12. Children ages 5 to 11 are free.
Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.
If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.
We are unable to refund any tickets purchased.
This is an event meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons but don’t have a connection to NF, please contact us via email at firstname.lastname@example.org or by calling 630-945-3562.
If you’d like to attend but need financial assistance or additional help getting to the event, please call 630-945-3562 or email .
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.