42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Naperville GS Walk 4NF Team Raises Awareness!

#DoIt4NF

Cash’s Crew Raises Awareness!

Posted By NF Midwest | On April 17th, 2018

Erin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and funds for neurofibromatosis any way she can! She just got the Rockford city council to proclaim May NF Awareness Month AND got some great coverage on the news on WREX in Rockford. Erin and her team, Cash’s Crew, are walking in the Great Steps Walk 4NF in Naperville on June 2nd.

She did it for NF and you can #DoIt4NF, too!

Way to go Erin and Cash’s Crew! Thanks for giving a shout out to NF Midwest and the walk in Naperville!

Watch the clip