NF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult NF care.
Join the NF Collective on Wednesday, February 24 at 6 PM CST for an inspirational webinar of young adult NF patients who will share personal experiences and advice on transitioning to adult NF care. This event is being held in conjunction with the release of “The Guide for NF Patients and Caregivers Transitioning (PACT) to Adult Care”, a new resource for the NF community put together by the NF Collective. Listen to personal testimonials, be inspired to better navigate the stressful but exhilarating journey into NF young adulthood, and reflect on the sharing of personal challenges and triumphs of our esteemed panel of NF young adults, including two from our NF Midwest community.
Topics covered include:
– personal NF journeys
– advocating for oneself in medical, educational, and work settings
– achieving independence
– advice for other young NF adults
Download the “Guide for NF Patients and Caregivers Transitioning to Adult Care” at nfcollective.org/resources.
The NF Collective was formed by a number of organizations focused to address various needs within the NF community and currently consists of the following organizations: NF Midwest, Littlest Tumor Foundation, Neurofibromatosis Northeast, NF Team, Texas Neurofibromatosis Foundation, Neurofibromatosis Network, and the Children’s Tumor Foundation. Recognizing a critical need for NF patients and families to find reliable NF care, the member organizations of the collective joined forces to provide reliable, accurate information about NF resources and caregivers.
Responses